Society for Medical Decision Making

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Patient Engagement Across the Lifespan and with Diverse Populations Short Course

Sunday, October 14, 2018
9:00 AM - 12:30 PM

Description: This course covered issues in patient engagement across the lifespan, with particular focus on working with older people, younger people, and people from other populations who are under-represented as patient partners (e.g., marginalized populations, people who do not speak the local language, etc.) The course was taught collaboratively by a group of patients and researchers with experience in these issues.
 

Course Director:

Marie-Claude Tremblay
Laval University

Course Faculty:

Audrey L'Espérance
Centre of Excellence on Partnership with Patients and the Public

Beverly Canin
Cancer and Aging Research Group

Isabel Jordan
Rare Disease Foundation

Sylvain Bédard
Centre of Excellence on Partnership with Patients and the Public

Surrogates and Caregivers in Decision Making Across the Lifespan Symposium

Monday, October 15, 2018
3:15 PM - 4:15 PM

Description: Medical decision making includes additional complexity when surrogate decision-makers and caregivers are involved. Such situations are particularly common at the beginning and end of the lifespan, though they are not exclusive to these time points. This symposium discussed methods and challenges in surrogate decision making (e.g., making decisions for one’s child, for one’s aging parent or partner, or for an adult who is unable to make decisions for himself or herself) and methodological advancements for integrating preferences of multiple people (e.g., caregivers, family members) in medical decisions. The overall learning aim for this symposium is for attendees to be better-equipped and informed when researching and addressing medical decisions that involve multiple people, particularly older and younger patients and their informal caregivers or formal surrogate decision makers.

Panelists:

Sasha Delorme
Caregiver

Brownsyne Tucker Edmonds
Indiana University School of Medicine

Alexia M. Torke
Indiana University School of Medicine

Chair:

Samir Gadepalli
University of Michigan, Department of Surgery

Decision Making About Pain Across the Lifespan Symposium

Tuesday, October 16, 2018
2:15 PM - 3:15 PM

Description: Pain is a common condition across the lifespan. Unfortunately, it is too often poorly-treated among younger and older people. This symposium focused on research about pain management across the lifespan and implementation of evidence about pain management in different populations, including pediatric populations and older adults. The symposium included a focus on policy decision making about opioid treatment and the potential for overuse and underuse. The overall learning aim for this symposium is for attendees to be aware of current research and implementation in pain management and to better understand how they might include pain as a patient-reported experience or patient-reported outcome in research and practice with people of all ages.

Panelists:

Christine Chambers
Dalhousie University

Isabel Jordan
Rare Disease Foundation

Lynn Gauthier
Université Laval

Hawre Jalal
University of Pittsburgh, Graduate School of Public Health

Chair:

Randall W. Grout
Section of Children's Health Services Research, Department of Pediatrics, Indiana University School of Medicine