About this Event
This beginner virtual course introduces participants to the fundamentals of measuring preferences in health and describe how these methods can support decision making and health policy.
Beginner course:
We will explore the role of preference assessment in understanding what matters most to patients and stakeholders, and how these insights have been used to inform clinical care, guideline development, and regulatory decisions. Participants will learn about commonly used approaches for eliciting preferences, such as best-worst scaling and discrete-choice experiments. The course will provide an introduction to best-practices to support the design, conduct, and analysis of preference studies. Through interactive activities and discussion, participants will experience the respondent perspective, practice developing preference questions and instruments to measure them, and review examples of how preference data are analyzed and applied in real-world contexts.
Learning Objectives:
- Identify common stated preference methods and determine when and how to apply them appropriately in health decision-making contexts.
- Explain how preference measurement complements other pillars of medical decision-making science, including decision modeling, stakeholder engagement, and decision psychology, and identify opportunities for integration.
- Describe the key steps in conducting a preference experiment, including attribute development, experimental design, and survey implementation
- Interpret preference study results to inform clinical, policy, and research decision- making.
Pre-Course Preparation:
To maximize engagement during the session, we will provide an introductory reading on preference assessment and its role in health decision-making. This document will outline key concepts, terminology, and examples to prepare participants for interactive activities. In addition, participants will receive a curated reading list that includes foundational articles on preference measurement, practical resources for designing, conducting, and analyzing preference studies, best practices for study design and reporting, and publications demonstrating how preference studies have been effectively applied to support decision-making in health contexts. No prior experience or software will be required for this course.
Faculty:
Dr. Norah Crossnohere is a patient-centered outcomes researcher. She has contributed to the design, conduct, and analysis of numerous preference studies across pediatrics, rare diseases, primary care, and cancer. She has also contributed to the development of guidance for the pretesting of preference instruments.
Dr. Ilene Hollin has developed stated preference surveys for patients and families in Duchenne muscular dystrophy, pulmonary fibrosis, potential living kidney donors, amyotrophic lateral sclerosis (ALS), congenital femoral deficiency and lung transplant candidates. She serves on the editorial board for The Patient.
Dr. Semra Ozdemir is an expert in stated-preference methods and shared decision-making tools, and has conducted health preference assessment studies in the US and Asia. Dr. Ozdemir is an Associate Editor for Value in Health and serves on the editorial board of Medical Decision Making.